Having fun 'n enjoying Summer

Echo did not get out of the hospital in time to make it to her Hope Kids events but we did have some fun since she has been home. She now has a walker she can use for short distances. It is great cause she feels like she has more freedom but she is super s..l..o..w! So if we are crossing the street in front of your car I apologize for the length of time you will wait. LOL. We played in the yard splashing in a new pool Grandpa Mark picked up for the kids. The weather has been so nice for playing. The kids wanted to wash my car to earn Mommy Money and let me tell you it looked nice (well the bottom of the van did). Me and Echo went to a fairy party for her friend Mia. So lovely, she is still talking about it. Then we visited the fire station and they had just baked the best chocolate chip cookies I have ever tasted.
We love the summer : )

Well on the way : )

Echo was up at Primary's bright and early Monday morning to get her MRI. Only we had to sit and wait for almost 3 hours!! They gave her Presidex? (not sure how to spell that)but it worked alright with Versed to allow Echo to have a very loud MRI performed on her leg. She was my little Sleeping Beauty for a few hours afterward which was nice seeing how little sleep she gets in the hospital. Then we went upstairs where she had urine and blood tests performed before she could start her chemo this time. All good even her weight went back up!! She started chemo and we hung out all day and had fun together. She told me it was the best day ever in the hospital. I was so happy no headaches, fevers, nausea, constipation, nothing. Oh, the things that excite me now. LOL. Her night nurse came on and she said, "I am in the mood to keep things going and have the best night ever in the hospital." LOVED HER! We had the best night ever in the hospital she was able to get up herself all night long and pee in the commode not in her Goodnights which I would interpret as she was not knocked out by all the Benadryl, Phenergan, Ativan, etc as she was on her previous admissions.

Well we did not get to talk to her doctor as scheduled on Monday but he did come Tuesday and talk to us. Dr Barnette said her MRI shows great progress in the soft tissue surrounding the bone which will make surgery a lot easier when we get there. He printed pictures for me I should try to get them on here to share with everyone. So the tumor is measuring about 9cm x 5cm Dr Barnette said it originally measured 20cm x 7cm. The bone does look worse in the main center of the tumor but we are taking that bone out anyhow. Good news is she will see Physical Therapy this week and start partial weight baring with a walker!! I think she will be so happy to get some of her independence back though I know it will wear her out as well. Nothing but smiles from my pretty little girl and a few from me too.

Love you all and thanks for keeping us in your thoughts and prayers : )

BTW after this week Echo will have two more chemo treatments (which will be every other Monday so that should equal one more month) and then we will start talking about surgery options. I know whatever comes her way Echo won't let nothing hold her back from being the best.

Been awhile...

Just a quick note to update everybody-Echo had a blood transfusion on May 28, 2010 that worked wonders on picking her back up again. She was tired, pale, and complained of "the worst headache ever." We then went in for Round 3 of chemo on June 7, 2010, yuck! She had a reaction to the Phenergan so the doctor dc'd it luckily with no additional nausea. While in the hospital Echo had an x-ray done on her femur I believe it was prompted by us asking when they think Echo can walk again. The radiologist said in his report he believed it was "progression of disease." One of her doctors, Dr. Jones, said he doesn't believe that and he has ordered a MRI on her next admission Monday, June 21. It was a huge blow to hear her tumor has not responded to the chemo therapy yet. Echo can not walk at all yet though she is able to crawl which unfortunately has brought back her pain! She has lost weight, puked quiet frequently, and endured so many headaches, basically it has been real hard on her! Wish us luck with finding foods she WILL eat and that her blood counts stay up. Keep her in your prayers for her MRI please. Thank you!